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Author
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Description
"Science writer Bijal P. Trivedi gives a comprehensive look at cystic fibrosis, from its late 1930s discovery to the recent development of breakthrough treatments for 90% of patients, and the way treatments for the previously fatal disease are opening the door for curing other life-threatening conditions"--
2) Daybreak
Author
Language
English
Formats
Description
The doctor's office is cool, white, sterile. But the doctor's words are searing: blood tests prove beyond a shadow of a doubt that Margaret and Arthur Crawfield's beloved, dying son is not their child. Now they must face Peter's death and the shock of having a son they have never met. Grieving, yet compelled, they begin a search that will tear two families apart.
Laura and "Bud" Rice share an elegant home and two children, brilliant,...
Laura and "Bud" Rice share an elegant home and two children, brilliant,...
Author
Language
English
Description
Twelve-year-old Caleb is shorter, frailer, and more protected than most kids his age. That's because he has cystic fibrosis, a diagnosis meaning lungs that fill with mucus and a shortened lifespan. Caleb tries not to let his disorder define him, but it can be hard with an overprotective mom and a perfect big brother."--pg. 2 of cover.
Author
Language
English
Formats
Description
In a run-down New Orleans suburb, an overprotected, bored teenager with cystic fibrosis becomes involved in a dangerous game when a mysterious group called the Society invites her to complete a few dares for the chance of winning big money to help pay for her costly medication and future college expenses.
Author
Language
English
Description
"L'Inconnue is a young woman lost in turbulent Paris at the turn of the nineteenth century. Amund is a Norwegian toymaker and father to two young children in the 1950s. Anouk is a contemporary Canadian suffering from cystic fibrosis, a medical condition that leaves her constantly fighting for air, swimming through the boundary between life and death as she awaits a lung transplant that could save her life. The way their stories intersect takes us...
Author
Language
English
Description
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF.
Author
Language
English
Appears on these lists
Books Written in Verse- Youth and Teen
Disability Pride Month (SCPL-YS)
Disability Pride Month 2023: Kids
OBD Novels in Verse - YOUTH
Disability Pride Month (SCPL-YS)
Disability Pride Month 2023: Kids
OBD Novels in Verse - YOUTH
Description
The unexpected appearance of a dolphin in her backyard creek helps a sixth-grader with cystic fibrosis learn to write her own story.
10) Fantasmas
Author
Language
Español
Formats
Description
"Hay algo inusual en este pueblo... Catrina y su familia se están mudando a la costa norte de California porque su hermana menor, Maya, está enferma. Cat no quiere ir a Bahía de la Luna y dejar a sus amigas, pero Maya tiene fibrosis quística y el aire salado y frío que sopla desde la bahía le sentará bien. Cuando las chicas salen a conocer el vecindario, alguien les revela un secreto: en Bahía de la Luna hay fantasmas. Maya se empeña...
Author
Language
English
Description
Hallie doesn't have long to live. And to make things even more complicated, she's in love with a guy who's seriously out of bounds. She's never going to let him know, of course; she's just going to enjoy every remaining moment of her crush. She's also determined to spend her last months helping those who write into her Dear Rose column with problems of their own. Her doctors can't fix her, but maybe she can fix a few other people's dilemmas before...
12) Cystic fibrosis
Author
Language
English
Description
Explores the history, symptoms, diagnosis, and treatment of cystic fibrosis, reviews ongoing research, and discusses how to live with the incurable genetic disease that is often called "65 Roses."
13) Cystic fibrosis
Author
Series
Language
English
Description
Discusses the history, symptoms, and genetic causes of the disease, and examines current scientific research aimed at treating it. --Publisher.
Author
Series
Language
English
Description
Introduces readers to the disease of cystic fibrosis, its causes, how it affects the body, and what it's like to live with the disease. Living Well is a comprehensive collection that teaches young readers how to stay safe and healthy in everyday life. These books present a wide range of health- and safety-related topics in a calm, straightforward manner, easing readers' fears and helping them absorb the facts. Students will learn how amazing and resilient...
Author
Language
English
Description
"When Amelie Day enters the Best Teen Baker of the Year competition, she has more at stake than the other contestants. Amelie has cystic fibrosis, and some days she can barely breathe. Determined not to let her condition or her mom stop her from taking part, Amelie takes matters into her own floury hands. But as she sets out to accomplish her dream, Amelie doesn't realize that she's hurting the people most important to her ... until an unexpected...
17) Salt in my soul
Language
English
Description
SALT IN MY SOUL is both a documentary and a coming of age story about Mallory Smith, a young woman figuring out how to live while dying. Mallory’s determination to fill her shortened life with hope, laughter, and love will leave you breathless. Based on the bestselling memoir of the same name, additional private writing, and hundreds of hours of audio and video discovered after Mallory’s death.
18) Cystic fibrosis
Author
Language
English
Description
Cystic fibrosis is a genetic metabolic disorder that affects the respiratory and digestive systems. Although the mortality rate for infants and children with cystic fibrosis used to be very high, more than half of all patients with cystic fibrosis now sur
Author
Language
English
Description
The inspiring story of one little girl's bravery in the face of an unrelenting disease In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating...
20) Teeth
Author
Language
English
Description
"Rudy's life is flipped upside-down when his family moves to a remote, magical island in a last attempt to save his sick younger brother, Dylan. While Dylan recovers, Rudy sinks deeper and deeper into his loneliness"--